Welcome

The CHILL study is exploring the experiences of children and young people with vulval lichen sclerosus (LS). The researchers are Sophie Rees and Becky Lambert, who work at the University of Bristol. We also have a team of expert doctors, people with vulval LS, and parents of children with the condition.

We have created information for parents and young people of different ages. Find the right information for your age group below.

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Information for parents or carers

Download an information sheet: CHILL Study Parent or Carer Information Leaflet

Parents: note that you can take part even if your child decides not to, and vice versa: your child can take part even if you decide not to do an interview yourself.

 

 

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Information for young people aged 14-17

Watch our video for 14-17 year olds:

Download an information sheet here: CHILL Study 14-17 year old Information Leaflet

 

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Information for young people aged 9-13

Watch our video for 9-13 year olds:

Download an information sheet here: CHILL Study 9-13 year old PIL v1.0 20-06-2025

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Information for children aged 5-8

Watch our video for 5-8 year olds:

Download an information sheet here: CHILL Study 5-8 year old PIL v1.0 20-06-2025

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Want to get involved or ask us a question?

If you would like to express an interest you can either contact us directly or fill in our Registration Form.

Contact Sophie and Becky by email: chill-study@bristol.ac.uk or telephone or use WhatsApp on this number: 07483 474368

 

We can’t wait to hear from you!